Burned out caregiver here. Little sister is medically…
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Burned out caregiver here. Little sister is medically fragile and turning 8. What Could i Give Her?
Hey everyone. need a little motivation i guess
I take care of my little sister, she’s 8. If you saw her you’d think she’s just a normal kid, but she’s been through more than most adults I know. She was born with tetralogy of Fallot and already had heart surgery. Her heart still works harder than it should. She also has velopharyngeal insufficiency so it’s hard for people to understand her when she talks, and cognitive processing delays, so school takes EVERYTHING out of her.
On top of that she has hypoparathyroidism, so her calcium drops sometimes and that puts her at risk for seizures (hypocalcemia). Her immune system is also really weak because her thymus didn’t develop right, so her T-cell count is super low. A regular cold can land her in the hospital.
Doctors call her “medically fragile.” I just see a kid who has to deal with way more than she should.
Her birthday is Feb 12. She LOVES dogs. Like, obsessed. I’ve been trying to save up to get her a dog (dream is a golden retriever) but money’s been tight and my work schedule is all over the place. I *will* get her one eventually, just probably not in time for her birthday. And I really don’t want her birthday to feel like nothing.
She doesn’t really have friends. I think she’s starting to notice. Sometimes she tells me she has no friends and I never know what the right thing to say is. I usually tell her she does, she just hasn’t met them yet. I don’t even know if that helps.
I’m burned out. I don’t even wanna show up to work anymore. I feel overwhelmed lately, well i try not to victimize myself, i know everyone is going through different stuff but still
So… does anyone have ideas for meaningful or symbolic birthday gifts? Stuff that doesn’t have to be expensive but feels special, maybe share some ideas of suprises you've done for your loved ones, i swear they're gonna help me a lot i really want to make her happy it doesn't necessarily need to be something material.
Thanks if you read all this. Even typing it out helped a little
#inspiration
source
Hey everyone. need a little motivation i guess
I take care of my little sister, she’s 8. If you saw her you’d think she’s just a normal kid, but she’s been through more than most adults I know. She was born with tetralogy of Fallot and already had heart surgery. Her heart still works harder than it should. She also has velopharyngeal insufficiency so it’s hard for people to understand her when she talks, and cognitive processing delays, so school takes EVERYTHING out of her.
On top of that she has hypoparathyroidism, so her calcium drops sometimes and that puts her at risk for seizures (hypocalcemia). Her immune system is also really weak because her thymus didn’t develop right, so her T-cell count is super low. A regular cold can land her in the hospital.
Doctors call her “medically fragile.” I just see a kid who has to deal with way more than she should.
Her birthday is Feb 12. She LOVES dogs. Like, obsessed. I’ve been trying to save up to get her a dog (dream is a golden retriever) but money’s been tight and my work schedule is all over the place. I *will* get her one eventually, just probably not in time for her birthday. And I really don’t want her birthday to feel like nothing.
She doesn’t really have friends. I think she’s starting to notice. Sometimes she tells me she has no friends and I never know what the right thing to say is. I usually tell her she does, she just hasn’t met them yet. I don’t even know if that helps.
I’m burned out. I don’t even wanna show up to work anymore. I feel overwhelmed lately, well i try not to victimize myself, i know everyone is going through different stuff but still
So… does anyone have ideas for meaningful or symbolic birthday gifts? Stuff that doesn’t have to be expensive but feels special, maybe share some ideas of suprises you've done for your loved ones, i swear they're gonna help me a lot i really want to make her happy it doesn't necessarily need to be something material.
Thanks if you read all this. Even typing it out helped a little
#inspiration
source
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